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If neither of these procedures is successful or your child has disease below the base of the tongue, she may need a tracheostomy.

This procedure improves the airway as new bone forms in the gap. It is called a sequence because one of its features an undeveloped lower jaw starts off a sequence of other malformations while a baby is developing in utero. By activating the device, the jaw is gradually brought forward carrying the tongue with it. For young adults with rare diseases, guidance and financial advocacy resources can simplify the transition from pediatric to adult care. Home Health Library P Pierre Robin Sequence What is Pierre Robin Sequence Pierre Robin sequence is a set of abnormalities in a baby that develops during pregnancy. In distraction osteogenesis, an internal or external device is applied to the mandible and a cut is made posteriorly. If successful, this is released in three to six months. In tongue-lip adhesion, the undersurface of the tip of the tongue is sutured to the inside of the lower lip to hold it in a more forward position. Tongue-lip adhesion and mandibular distraction osteogenesis have both been performed with favorable outcomes. Surgical intervention includes tongue-lip adhesion, mandibular distraction or tracheostomy.

In patients who are more severely affected or have abnormal sleep study results, surgical alternatives can be considered. Care may also include the addition of a nasopharyngeal airway until your child matures neurologically and has grown enough to bring the tongue into a more favorable position.

In more mild cases, management may consist of positioning your child in a side or face-down position to allow the tongue to fall forward and relieve the obstruction.